tag:blogger.com,1999:blog-1617298245397958197.post2387176650028901660..comments2023-03-29T01:38:18.378-07:00Comments on Lil' Samsquatch: Need to ClarifyJennyhttp://www.blogger.com/profile/13101399559614616079noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-1617298245397958197.post-83235121110891715482010-11-18T14:12:45.636-08:002010-11-18T14:12:45.636-08:00Without knowing many of the details (since I didn&...Without knowing many of the details (since I didn't read the KIDZ thing) I can relate to how you are feeling. When we run across something that we are passionate about, it is natural to be enthusiastic and want to share it. I have done plenty of that kind of thing and have met with mixed results (being ignored is one of them). Having a brain injured child and having read the book and considered taking my son to the institute in Pennsylvania a decade ago, I understand your desire to help your daughter acheive her full potential. Even if it only eased some of her frustration and the suffering that follows would make it worth it. Yet, knowing at what point to accept your disabled/challenged/different child and when to not give up trying to make their lives better is a major struggle for all of us. I feel that I put way too much into it for the first 15 years and haven't put enough into it for the last six, but I was so worn out! However, they learn the most when they are young so that's the time to be intensive. I just didn't want to look back and regret that I didn't do more for my child. You just keep doing what feels right for you--there is no one size fits all solution and you don't have to apologize to anyone for your choices. There will always be people who have different opinions and that is why they are the parents of that particular child (IMHO) because that is what that child needs. Or that is the lesson that parent needs to learn. Or whatever. Either way, you rock!Heidihttps://www.blogger.com/profile/12660156433881882098noreply@blogger.comtag:blogger.com,1999:blog-1617298245397958197.post-70746581343742959872010-11-17T16:22:50.679-08:002010-11-17T16:22:50.679-08:00Thanks for your clarification on this Jenny. Don&#...Thanks for your clarification on this Jenny. Don't worry, your original post was not misleading. I didn't think you were saying the Doman therapy was "the best since sliced bread" and was for everyone. I am glad that you mentioned the group that had separated off from Doman. That is research that I had neglected to do at the time that I found the refuting article. I have been meaning to look in to it at some point.<br /><br />I constantly go to mom blogs for support, advice, and ideas. There is no need to feel sheepish about your post. I know that none of us take decision-making lightly with our special kids. Keep doing what you are doing. And please keep posting about it because I am always interested in learning about anything that I think might benefit my Shelby.Tiffanyhttps://www.blogger.com/profile/17374588370225965951noreply@blogger.comtag:blogger.com,1999:blog-1617298245397958197.post-63927833545632850252010-11-17T14:14:31.842-08:002010-11-17T14:14:31.842-08:00I like all of your feedback. I totally understand...I like all of your feedback. I totally understand what you are saying - do what you think is best. I know in my (Jackson's) case, the syndrome is so new and rare that Jackson is one of the pioneers. We really do have to try everything and then see what is the best fit. So, I'm all for putting information out there and then letting each family decide. That is what our support group (7q11.23 duplication) does for the parents who are a part of our group. So... thanks for sharing!Jenniehttps://www.blogger.com/profile/03592479368162912917noreply@blogger.com