Wednesday, June 12, 2013

Redefining Beauty

If you have a child with a disability, do you remember the day son or daughter was diagnosed?  Do you remember sitting with the geneticist?  I do.  I remember it clearly.  Both times (because we have done this 2x), we sat with the geneticist and they really weren't able to give us too much information.  The first time, Samantha was still an infant.  And so, we went home, and I went to Google.  I didn't want to.  I think I held off for a good 15 minutes before succumbing to that evil search engine!  And the images that came up broke my heart.

I now know that pictures don't define my daughter...but they do certainly impress a lasting impression on one's mind.  And in the very beginning, when you are moving forward inch by inch, hanging on words and phrases that doctors give you...those pictures can make you feel like any and all future for your child is doomed.

That's why I loved this story.  I love what this fashion photographer is trying to do ~ to redefine beauty, to open our eyes, to help us see hope, love, and beauty in our children.

How would I have felt if instead of pictures like the ones I saw, when I typed in microcephaly these images popped up?  I could have still seen tight arms, smaller body frame, facial features...but they are also just really cute pictures, aren't they?

Ok, I could have found a cuter picture.  But still.  She's so cute.

Look at the light in those eyes.  Our doctors gave us no hope for light...but it beams from her.

That's one reason why making Samantha's story public is important to me.  Search microcephaly today, and you'll see her face pop up, among the many other pictures.  Parents need real information...the everyday stuff.  They need hope.  They need comfort.  They need reassurance.  And with all the pain, they need to see the smiles and the beauty.  I love this man for the work he is doing.  His influence will help many families, and hopefully even change the medical books.


  1. Anonymous13 June, 2013

    With her curly blonde hair and bright blue eyes, Samantha is gorgeous.

  2. I love it! He is doing a great work...That's just awesome. Sammy is beautiful!

  3. So because I was curious about what you had seen, I typed "microcephaly" into Google Images. And what I saw was...Sammy! Everywhere! In the first ten pictures there are three pictures of Sammy (and one of you). Made me smile.

  4. Anonymous28 June, 2013

    This is my first time to leave a comment, but I have followed Sammy's story for a while. We are adopting a little baby girl that has been diagnosed as microcephaly, seckel syndrome. She just turned 1 mid June. When I searched it up I saw Sammy's face and thought she was beautiful. I even thought maybe the search engine was wrong because she was so cute. A lot of the other pictures did frighten me that the medical books had put out. Thank you for sharing her with us.

    1. You've just made my day! I already love you and want to meet :) Congratulations and stay in touch.


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