Dearest Samantha,
You have been such a little gem the past two days. You have quite honestly glowed and it's been so fun. Today, in particular, you were a delight. I'm talking pure delight. Good stuff there. You smiled a ton. You giggled. You enjoyed a 2 hour walk with me without complaint. It was a good day. And, though I'm not sure what will happen tomorrow because of it, we forgot to give you your seizure medication this morning. And it just makes me wonder...how is this stuff really affecting you? I mean, I know it helps with the seizures, but how does it make you feel? I wonder if it makes you sleepy and thus, irritable sometimes. Though, honestly, you are usually a happy girl, but even still...I wonder. The days we have forgotten your morning dose (we are responsible, I swear), usually on rushed Sunday mornings, you are purely magical...people become even more smitten by your smit-ability. My dear, you are quite charming. But, we will continue with the medication until you are stable (seizure free) for a year. Sorry. Doctor's orders. We'll see. But I sure love you, even when you're a little cranky.
Forever your mommy I'll be.
Mommy
seizure meds suck :) can you tell I speak from experience? LOL! Glad you had a good day Sammy!
ReplyDeleteYeah, I hate knowing that Emily's seizure meds (and she takes THREE daily!) affect her the way they do. I just emailed our neuro today in fact to tell him that although the Primidone is doing a great job of controlling most (not all) of her seizures, it's making her a Saddy Face Crying Pup and I don't like it.
ReplyDeleteI hope her all clear comes at that one year appointment so that she can be weaned off her med!
Your blog is adorable and that Sammy? My goodness. :)
ReplyDeleteI understand completely about seizure meds! My daughter is just under your daughter's age and was on seizure meds for 2 years, from 1.5 to 3.5 years old. Once she got off, and I mean right away, she went from using signs to talking with real words and small sentences, and generally more happy. Her face stopped drooping, we no longer suspect SPD, and she upped in all areas. She still receives services, but she is not moderate to severe anymore, but mild. Seizure meds are scary but seizures are too. Good luck! You seem like such an amazing mother and Sammy is lucky to have you!
Chloe
(of course after I posted that, I walk in on her having a seizure in her sleep)
ReplyDeleteI hope you don't think I'm creepy always reading your blogs. I love them! :)
Chloe
Oh no! I hope you're daughter's seizure was relatively mild. Doesn't that always happen? It's like we jinx ourselves when we say something positive! But, it won't stop me:) Optimism optimism, right?
ReplyDeleteYes yes! We have to stay positive. :) Of course right in the middle of the seizure is where I freak out just a little... Okay fine, I burst into tears and my husband comes in and helps. The seizure was more mild than we're used to, probably a partial, so that's good. But we don't know when it started or what it would have looked like if she was awake...Off to a 48 hour EEG soon...
ReplyDeleteAnyways, perfect Halloween costume! I can't believe she stayed in the wagon so long. Awesome.